Challenge: How to Manage Solutions for the Fastest Growing Development Disability?

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1 in 59 children has been identified with autism spectrum disorder (ASD) as found by CDC’s Autism and Developmental Disabilities Monitoring (ADDM) Network. Is it an Epidemic? How can the medical community grow to manage to keep pace with this fastest of growing development disabilities?

Systems are constrained. A recent story from the USA, a county in Elkhart Indiana opened 2 new Autism Centers, and still could not keep pace with the demand for services. Their county had 7 centers open to service Autism Spectrum Disorder Patients, but the lack of sufficient local services, still had caregivers commuting 4 hours daily for patient treatment.

AAP News reported with developmental disability is on the rise. A staggering 18% of children have development disabilities, according to a recent National Health Interview Survey. Research by Centers for Disease Control and Prevention and the Health Resources and Services Administration seems to suggest quality early diagnostics is improving our ability to diagnose, and thus manage developmental disabilities. The volume of unspecified developmental delays have reduced from 4.65% to 4.1%, most likely due to more specific diagnostics.

According to a recent CU Boulder Study found United States autism rates among racial minorities have increased by double digits in recent years an upsurge with Blacks exceeding Whites, and Hispanic rates of growth is faster than any other group.

Facts and Statistics: More and More demand. Faster and Faster Growth

•10 – 17 % annual growth

•$90 billion annual cost

•90% of costs are in adult services

•Cost of lifelong care can be reduced by 2/3 with early diagnosis and intervention

•In 10 years, the annual cost will be $200-400 billion

More Demand for Autism Services and Resources is Inadequate

•Zero or low awareness of Autism

•There is information overload, but lack a trusted single online web portal which provided complete End-to-End (E2E) solution.

•No Integration between the Private & Public Autism related systems •Moving the files, records & data (e.g. EHR)between the systems is not possible in the current situation.

•Raising complexity of the existing systems. Not user-friendly •Information relating to Autism is all over the internet. No one-stop-shop!

•No Database to maintain the track record of improvement

•Planning, Budgeting, Calendars are not available for the parents to  track and monitor the progress.

•Early Intervention – Tracking from birth to 3 is said to be very critical. No System in place to achieve this.

•Change in Autism world due to new researches like Stem Cell & Gene Therapy not being properly informed to the care givers.

Autism Support and Services Innovation is at a Critical State

How can the community come together to address this high demand for quality services locally where people suffer, and globally, even to the farthest regions where quality care and diagnostics are nonexistent? The challenges are huge, but the opportunities are as well. We can do so much more through partnership and innovation. We will explore the topics, discuss the challenges, and emerge solutions in Trizy. We are looking to partner to bring the best of Autism Support and Service Resources Worldwide, to one trusted center of excellence. with focus on care, wellness knowledge, and quality case management.

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